RESOURCES
This is a place for us to share the results of the hours of research that we have done for our kids. I hope this list can save you days of your life being lost with your face in your computer. I have only entered a few of my resources and will continue to add as I have time! This is an ever evolving list and is a compilation of resources I have come across and submissions from you.
Scroll to the bottom of the page to submit your resource!
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CONNECTION
Follow:
Read & Listen:
- Special by Melanie Dimmitt
- The Rare Life Podcast with Madeline Cheney
Groups:
- Parents of Children with Rare Disorders Facebook Group
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TUBE FEEDING
Enteral Feeding Whole Food:
Tube Feeding Resources:
- Blended Tube Feeding
- Pixel Print Pro - wrenches and leak shields for feeding bag tubing
- The Priceless CA - button and tube locks to prevent disconnection
-
AUTISM
